Cure SeCure

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FAQs

1. Why is Cure SeCure focused only on rare diseases?

Rare diseases often require specialised care, multiple consultations, and complex diagnosis pathways. Cure SeCure is built to bring the right doctors, labs, and information together in one place to make this journey easier for patients and families.
Cure SeCure is designed for patients with rare diseases, their families, and caregivers. It can also be used by anyone looking for reliable information, doctors, labs, or support resources related to rare conditions.

You can explore most parts of the platform without creating an account. However, features like the Cure SeCure Patient Card require registration.

A medical geneticist is a doctor trained to diagnose and manage genetic conditions, including rare diseases. They can guide you on the right tests, confirm a diagnosis, and help plan the next steps for treatment and care.

Yes, many of the listed labs offer specialised genetic tests for rare diseases. In most cases, a medical geneticist will recommend the appropriate test based on your condition, which you can then have done at a suitable laboratory. Some labs also offer specific rare disease testing panels.

Currently, direct booking is not available on the platform. However, you can view detailed profiles of doctors and labs, including their contact information and websites, and connect with them directly to book appointments or tests.

Yes, the platform includes a dedicated section where you can explore rare diseases based on categories, symptoms, and curated articles to better understand conditions and care pathways.

The Cure SeCure Patient Card is a secure digital card designed specifically for rare disease patients to store and access their medical history, diagnosis, and reports.

You can register by filling out a simple form yourself, or your doctor can help create your profile.

Yes, the card is designed specifically for individuals with rare diseases or those undergoing evaluation for a rare condition, ensuring their specialised medical information is easily accessible.

Once you register, your secure profile is created and linked to your patient card. Your card includes a QR code. When scanned, it gives access to your medical details stored in your profile. Your information can then be viewed and updated as needed by you or your doctor.

Your information is only accessible when your card is scanned or when you choose to share access. Only authorised individuals, such as your doctor, can view your details.

Yes, you will be able to stay informed about when your records are accessed or updated, helping you stay in control of your medical information.
You can browse through medical geneticists, diagnostic labs, and clinical centres based on your needs, location, or condition, and explore their profiles to make an informed choice.

You can explore the listed communities and NGOs and use the provided contact details to reach out directly for support, guidance, or to connect with others.

We aim to provide accurate and relevant information by curating profiles of doctors, labs, and organisations from trusted sources. Details are regularly reviewed to maintain quality and usefulness.

Your medical information is only accessible to you and authorised individuals, such as your doctor, based on secure access permissions.

Your data is securely stored and managed with care. Access is controlled, and your information is only shared when required and permitted by you.

Start by exploring the information section or connecting with a medical geneticist who can guide you on the next steps.
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